Livedo Reticularis Questionnaire To Help Gather Information
This page offers a Livedo Reticularis Questionnaire to help in the gathering of information.
Trying to find the commonality of those affected by this disorder can only help in understanding the cause and origin of it.
I have received many emails from many people thanking me for making my page(s) available. The illness seems to be overlooked by most doctors and physicians, and this is very sad indeed.
Reticularis usually presents itself as a secondary condition that is usually caustic from another primary condition, disease, or illness. You may not think that all the questions on the Livedo Reticularis Questionnaire are relevant. My consideration in making the questionnaire was trying to think outside the box. Finding a root cause of this problem is far reaching.
This is especially true when doctors tell you that they don’t know how to help you. Suggesting more exercise and stopping smoking seem to be generic remarks echoed by most physicians. If they don't know what causes it, then how can they be sure that these suggestions will help it?
*I am presently looking for an internist or a Rheumatologist to read the questionnaire page form results! If you have a doctor who might be able to help, please contact me. I have an NP who helped me with the questionnaire but have been unable to find a doctor who is qualified to help us. Thank you!
This is what livedo reticularis looks like:
The fact that there is not any real help offered by the medical community is disheartening at best. The mental anguish felt by those with the condition is very real.
The fact that is, that we often feel like freaks and have to hide our skin in order to ‘fit in’. In an age where beauty and health are stressed so hard, the condition becomes an overwhelming source of distress.
Anxiety and depression are common emotions, as I’ve talked to folks who bodies were greatly affected by the condition.
If you suffer from Livedo Reticularis, I appreciate that you might consider filling out the form below. The more people that do this, the more information you'll have to share with your doctor(s). After you fill out the form, you will see an immediate thank you page that will give you a graph of the responses collected so far. Since this form was new, (9/25/07), the form has been filled out hundreds of times!
However, we have to start somewhere!
I am very devoted to finding a cure for this disorder. There has to be one out there. There is just not enough research or studies being done!
Maybe in time, a physician can spot the commonality between us and this will hopefully enable the medical community to be searching for new answers in the ‘correct’ direction. There seems like no other way to gather the information needed.
If you have a suggestion on another question that needs asking or that you think of, please submit that to me on my contact page or in the comments part of the form.
Remember, when everyone share’s, everyone wins!
In the form below, your email address is optional. You email address will only be of use to you. I do not like spam, therefore I do not spam. I am not collecting email addresses from you if you use this form. That is my promise to you!
Thanks for your consideration!
I have also recently gotten some medical help for our condition! Yay! Finally, after 7 long years! I will be posting more information about treatment as soon as I can get the information sorted. Please bookmark this page and check back in the next few weeks! Also, there is now a Part II for this form below. Please be sure to fill out both forms!
Thank you for your participation is the Livedo Reticularis Questionnaire(s). Your comments are always welcome also. Please feel free to contact me anytime here.
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