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Livedo Reticularis Questionnaire To Help Gather Information

This page offers a Livedo Reticularis Questionnaire to help in the gathering of information. Trying to find the commonality of those affected by this disorder can only help in understanding the cause and origin of it.

I have received many emails from many people thanking me for making my page(s) available. The illness seems to be overlooked by most doctors and physicians, and this is very sad indeed.



Reticularis usually presents itself as a secondary condition that is usually caustic from another primary condition, disease, or illness. You may not think that all the questions on the Livedo Reticularis Questionnaire are relevant. My consideration in making the questionnaire was trying to think outside the box. Finding a root cause of this problem is far reaching.


This is especially true when doctors tell you that they don’t know how to help you. Suggesting more exercise and stopping smoking seem to be general remarks echoed by most physicians. If they don't know what causes it, then how can they be sure that these suggestions will help it?

*I am presently looking for an internist or a rheumatologist to read the questionnaire page form results! If you have a doctor who might be able to help, please contact me. I have an NP who helped me with the questionnaire but have not been able to find a doctor locally who is qualified to help us. Thank you!

This is what livedo reticularis looks like:

livedo reticularis imagelivedo reticularis image

The fact that there is not any real help offered by the medical community is disheartening at best. The mental anguish felt by those with the condition is very real.

The fact that is, that we often feel like freaks and have to hide our skin in order to ‘fit in’. In an age where beauty and health are stressed so hard, the condition becomes an overwhelming source of distress.

Anxiety and depression are common emotions, as I’ve talked to folks who bodies were greatly affected by the condition.

If you suffer from Livedo Reticularis, I appreciate that you might consider filling out the form below. The more people that do this, the more information you'll have to share with your doctor(s). After you fill out the form, you will see an immediate thank you page that will give you a graph of the responses collected so far. Since this form is new, (9/25/07), the first ones to fill it out won’t get much information.

However, we have to start somewhere!

I am very devoted to finding a cure for this disorder. There has to be one out there. There is just not enough research or studies being done!

Maybe in time, a physician can spot the commonality between us and this will hopefully enable the medical community to be searching for new answers in the ‘correct’ direction. There seems like no other way to gather the information needed.

If you have a suggestion on another question that needs asking or that you think of, please submit that to me on my contact page or in the comments part of the form.

Remember, when everyone share’s, everyone wins!

In the form below, your email address is optional. You email address will only be of use to you. I do not like spam, therefore I do not spam. I am not collecting email addresses from you if you use this form. That is my promise to you!

Thanks for your consideration!

Kind regards!

XO,
Carolyn

[Recently I have also added a LR forum to this site! I am so excited to have it up and running! Of course, it's new so posts will be slowly coming in. I am hoping you will find lots of support here! You can reach it quickly and easily! Look Great Forums. You will find the LR forum in the Health Section.]






Livedo Reticularis Questionairre
Please note that all fields followed by an asterisk must be filled in.
First Name*
E-mail Address
Country*
Please Tell Us About Your Experience.
What is Your Gender?
Male
Female
What is Your Age Group?
0-10
11-20
21-30
31-40
41-50
51-60
61-70
Over 70
What is Your Ethnicity?
Caucasion
African American
Hispanic
Asian
European
American Indian
Australian
Canadian
Hawaiin
Other
Did You Have Blood Tests Done?
Yes
No
If Yes, What if Anything, Was Determined?
How Long Have You Had Livedo Reticularis?
0 - 10 Years
11 - 20 Years
Over 20 Years
What Is Your Blood Type?
Type A
Type B
Type AB
Type O
Are Not Sure
What is Your General Weight?
Underweight for my height
Normal for my height
Overweight for my height
Do You or Did You Used to Smoke?
Yes
No
Have You Ever Had Chicken Pox?
Yes
No
Do You Take Birth Control Pills or HRT?
Yes, I take/took BC
No BC ever
Yes, I take/took HRT
No HRT ever
(if so, how long did you take them?)
1 - 10 years
11 - 20 years
Over 20 years
Do You Have Problems with Bug Bites? Is Your Skin Hyper Sensitive to Them?
Yes
No
Does your condition hurt in any way?
Yes
No
Did You Have a Virus or Other Illness When You First Noticed Skin Discolorations?
Yes
No
Is Your Reticularis Visible In The Morning When You Wake Up?
Yes
No
Are You Frustated With the Medical Community?
Yes
No
Would You Be Willing to Be Part of a Study To Help This Condition?
Yes
No
Are You Presently Depressed?
Yes
No
Are You Presently Under a Physicians Care?
Yes
No
Do You Take Extra Vitamins Daily?
Yes
No
Do You Exercise Regularly?
Yes
No
May I Email You About Your Submission?
Yes
No

Please enter the word that you see below.

  



Thank you for your participation is the Livedo Reticularis Questionnaire. Your comments are always welcome also. Please feel free to contact me anytime here.





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To go to the next Healthy Money Saving Tips page, here's the link: Help for Chronic Back Pain

To view the previous Healthy Money Saving Tips page, here's the link: What is Livedo Reticularis?



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